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Research Project Manager- Neuroimmunology Center The Gorman Lab
The Gorman Lab, located within the Neuroimmunology Center, focuses on the treatment, research, and understanding of the natural history of Opsoclonus Myoclonus Ataxia Syndrome (OMAS). OMAS is a rare disease affecting approximately 1 in 5 million children, with Boston Children's Hospital being a leading site in the US for families seeking treatment.The OMAS Project Manager will oversee a patient registry spanning 6 US sites and 2 international sites. This role includes managing patient enrollment, maintaining the REDCap database, handling data management, tracking finances, and providing guidance to PIs and coordinators at the other sites. In addition to the registry, the PM will collaborate with other PIs in the Neuroimmunology C
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