The group is headed by Dr. Basil T. Darras, who specializes in molecular genetics and diagnostics of Duchenne and Becker muscular dystrophies, spinal muscular atrophy, and other myopathies, and on defining the indications for new diagnostic methodologies in the evaluation of children with pediatric neuromuscular diseases. His clinical focus is the care of children with neuromuscular conditions originating from inherited or acquired conditions of the motor unit. The Neuromuscular Group at BCH is a major site for clinical studies on spinal muscular atrophy and muscular dystrophy.
Principal Duties and Responsibilities
Consenting and recruiting patients for research studies through personal interviews and written communications with patients/families. Providing detailed background information regarding studies to families, communicating all policies and procedures, and responding to all inquiries. Evaluating suitability of prospective study candidates and making selections based upon clinical knowledge of each study.
Serving as liaison to the families/patients in the research studies, conducted at both on-site and off-site locations, guiding and advising them throughout each phase of the study. Coordinating follow-up visits as necessary. Acting as a resource to study participants, addressing any concerns they may have. Troubleshooting resolution of any issues that may arise throughout the study.
Coordinating and preparing the necessary documentation for Institutional Review Board (IRB) and Committee on Clinical Investigations (CCI) submissions, together with the Private Investigator of the study.
Creating and preparing data collection statistical reports and analytical summaries for distribution to study research team for review and analysis. Writing articles and summary papers of studies for submission to medical journals, as may be necessary/requested.
Participating in the training of newly hired research study assistants, as required.
Coordinating activities between the hospital and research laboratories to ensure correct testing/processing and send out instructions specific to the study. Communicating project policies and procedures to personnel. Monitors and reviews data collection and data entry, and informed consent procedures - ensuring consistency of application for each study.
Performing other miscellaneous administrative duties as assigned or required.
To qualify, you must have:
The knowledge of theories, principles, and concepts acquired through completion of a Bachelor's degree.
The analytical skills to resolve problems that require the use of basic scientific, mathematical, or technical principles.
The ability to communicate effectively both orally and in writing.
Boston Children's Hospital offers competitive compensation and unmatched benefits, including affordable health, vision and dental insurance, generous levels of time off, 403(b) Retirement Savings plan, Pension, Tuition Reimbursement and discounted rates on T-passes (50% off). Discover your best.
Boston Children's Hospital is an Equal Opportunity / Affirmative Action Employer. Qualified applicants will receive consideration for employment without regard to their race, color, religion, national origin, sex, sexual orientation, gender identity, protected veteran status or disability.
Internal Number: 3038774
About Boston Children's Hospital
Boston Children's Hospital is a 395-bed comprehensive center for pediatric health care. As one of the largest pediatric medical centers in the United States, Children's offers a complete range of health care services for children from birth through 21 years of age.